Today was full of chills and blisters and burning rash. I cried for what seemed like a good half hour at one point. I hate this. I just. hate. it. Tried calling back and forth to all my docs. I stayed gluten free today, but broke into a massive “flare” after I had gluten-free cereal with milk and a hard-boiled egg. So, then it occured to me maybe I had a dairy/lactose/milk/whatever allergy. After making a few calls, turns out I did NOT get blood tests to address allergies! WTF? And not just that, but after calling and calling and leaving al sorts of messages and waiting for replies, they would NOT do a skin allergy test on me because of the pregnancy. I felt, at that point, like I was gonna have a full-blown FLIP OUT. It was tough.
I also had someone tell me, if Dapsone was affective, it probably was NOT a food allergy. But they also told me it wasn’t gluten/wheat/celiac.
So, where am I now other than with swollen, red eyes and hopeless feeling? lol… still going to stick to a GF diet AND tomorrow.. on to try dairy-free too. What a frustration. I didn’t think it was dairy, but I made an alfredo sauce for dinner – and poured a little over GF pasta, and within a few bites, I had rolling waves and chills all over and rising blisters… hideous, terrible, disgusting.
I’m going to self pay for a blood test for food allergies. See where we get from there. I took Benadryl a couple of hours ago and it’s definitely helping. Doesn’t that mean I am having an allergic reaction? It’s helped so drastically…
Sorry to rush off, it’s just been such a long day…
Oh Colie that is awful. I wish they could figure out what it is.
I have eczema and have had some major outbreaks but not blisters like you are having.
P.S. If Benedryl works then I think it is an allergic reaction – JMHO
Holy Crap, Coley. I’m just catching up with you, and my God woman – what you are going through!!!
I hope you find out what the heck is going on, and quickly. You sound miserable, and I wish there was something I could do to help you!!!